Life with Ella the Conqueror has been as busy and full of blessings as ever. She has had to deal with a couple of different bacterial infections, but true to form she has come through. We find ourselves in a position to take important steps to improve our families mobility and overall quality of life. Please use the link below to our GoFundMe page that describes a new fundraising campaign to help our family afford a new wheelchair van. We cannot do this without your support. Please share the link with your personal networks. Every contribution brings us close to our goal.
We Are All More Than Conquerors
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Since coming back home Ella has returned to school and is loving it. Her classmates and teachers are as happy to have her back as she is to be back. In addition to going to school, Ella is also receiving in-home therapies to increase her strength and dexterity. She is seen by a speech pathologist and occupational therapist a couple of days a week at home. We are currently looking for a physical therapist that does in-home care, in the mean time she will be getting PT back at CCMC once a week.
As you can see Ella the angel warrior is doing quite well. We are not where we want to be, but we further along than we were. We covet and appreciate your prayers. They keep us encouraged and motivated to push Ella to do more each day.
We Are All More Than Conquerors
We have been home for three days and it has been an adventure. To say that having Ella back home has been a bit of a transition would be a great understatement and yet I am still extremely grateful that my family is all back together under one roof. We are all trying to find our way in our amazing new home that is not quite unpacked or all the way organized. That all-important routine that most families fall into still seems to elude us but I know we will get there. Ella is so excited to be home in her pink room and play with her toys and read her books and get access to her family on a regular basis has been great. It is also great to be back under the compassion and care of our skilled home care nurses. We are so blessed to be partnered with an amazing nursing company and have great nurses working with us and caring for our baby I am certain it will only be a matter of time before her strength and mobility return.
We also had an important meeting with members of Ella's school yesterday and it looks like she will be returning to school starting Monday morning. It will be so great for her to see and interact with her school friends again as well as get some time outside of the house. Additionally our family returns to church for the first time in 3 months this Sunday. What a great celebration that is going to be. If you happen to find yourself anywhere near Manchester Connecticut this Sunday I invite you to attend morning service at Faith Tabernacle 110 Utopia Road Manchester CT at 10 am, it's going to be epic.
We are grateful for your continued prayers and concern please continue to keep Ella in your minds and in your hearts, we are back home but there is still so much work left to be done.
We are all more than conquerors
Well our time was somewhat brief, but over the past two and a half weeks we have made some great friends at the Hospital for Special Care. I'm not even going to attempt to name names, I will say though we have been incredibly impressed and fortunate to work with such a great group of skilled professionals. Your organization cares a great deal about the children under your care and we got to witness that first hand. Our family experienced the benefits of your skill and compassion. Ariella has made some great strides under the watchful care of the PT's, OT's, RT's, RN's, CNA's and Docs at HSC. Thank you all for making our baby stronger, more independent and most importantly well enough to return home. Your organization does great work and we thank God for the time that we got to spend together. From our Family to yours Thank you.
We are all more than conquerors.
It is finally upon us; tomorrow Ariella comes home. It has been a long, incredible journey, full of plenty of highs and lows and thanks to the unwavering support of those of you that follow this blog our baby is much better today then she was several months ago. Mom and dad spent a good portion of the weekend getting our little angel's bedroom together. It is rather fortuitous that 2 years ago Grandma Denise bought our baby a twin bedroom set not realizing that her bed, at the time, converted to a full size bed, however that bedroom set now belongs to her little brother Daniel and Ella's current bedroom includes a twin bed. Thank you grandma Denise we now have a beautiful set for our baby's new bedroom.
However if it weren't for a group of incredibly special and talented people I don't know if our house would be in the condition it is in in order to welcome our little conqueror home. My mother, Ruth Davis and stepdad Ike Davis along with very very close friends and family Uncle Philip Reeves and Auntie Theresa Reeves, Auntie Karen and Auntie Gretchen have spent and continue to spend countless hours painting, building walls, shaving doors, hanging doors, restoring doorways and trim, and more. So much needed to be done in order to make this house feel like a home and my parents along with our extended family have made that possible. I truly cannot say thank you enough mom and Ike, Phil and Terry, Karen and Gretchen, you have given of your time, you have traveled hours over the highway and because of you when Ariella returns tomorrow she will come not just to our new house but she will come to her new home. Thank you all so very much.
This by no means marks the end of this blog we will continue to provide regular updates as to how ella is adjusting to life at home and how we are adjusting to providing the care and support that our angel needs in order to thrive and be everything that God has called her to be. Please continue to check the blog regularly for updates photos and pictures.
We are part of an amazing team. My daughter is alive today due in no small part to all the support, encouragement, love, prayers and affection that each of you have shown us in your own unique way. It is my prayer that no one has to experience what we have had to endure but if you should find yourself in an extremely difficult situation I would further pray that you feel and experience the love and support that my family has felt an experienced over the last two and a half months.
I don't doubt that God is real because I have experience is unconditional love through the amazing support I have received from all of you - Team Ella.
We are all more than conquerors
I know the updates have been rather sparce this week. We are grateful for your patience and understanding. This has been a busy and full week all the way around. Ella had some more special visitors, Danielle and her mom Ms. Shavonne stopped by and brought Ella more fun puzzles to do. Thank you Shavonne and the rest of the Sims family for your generosity. We also want to thank Susan and Bill Yeske for their visit last week. Bill has had a trach for more than 15 years. It was nice for Ella to meet a big person with a trach and see how wonderful life can be with a trach.